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Latest news

Find out what’s been happening within the charity in recent months and read more about our work and the projects we’re involved in.

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Family believe Charlie should still be alive today

The inquest into the death of Charlie Marriage will take place from June 24-28 at Inner London South Coroners Court, Southwark.

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Pressure on party leaders to fix medicine shortages

SUDEP Action is continuing to work with Epilepsy Society, Epilepsy Action and Parkinson’s UK to improve access to life-saving medicines.

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‘Bella would be so proud’

SUDEP Action supporter Colin Eveleigh will have a work displayed at The Royal Academy’s Summer Exhibition in July and August.

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New study: More risk discussions needed with patients

Research compares views of epilepsy professionals in the UK and Norway: Despite international guidance, SUDEP-related discussions are still not consistently taking place.

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We all need to ‘be more Hannah’

A family is urging each other to ‘be more Hannah’ in memory of Hannah Smith, who died last year from SUDEP.

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Our Help for Hope pledge – ask your MP!

If elected, I will meet with SUDEP Action to talk about rising preventable deaths and harms to people with epilepsy.