Children’s SUDEP & Seizure Safety Checklist
Children’s SUDEP & Seizure Safety Checklist
Coming soon! The Children’s SUDEP and Seizure Safety Checklist
We are currently working with Cornwall Partnership NHS Foundation Trust and Young Epilepsy to create a paediatric version of the SUDEP and Seizure Safety Checklist.
This exciting project will gather feedback from health professionals, young people with epilepsy and the parents of children with epilepsy, to create a new resource to support important conversations.
Register to the SUDEP and Seizure Safety Checklist
Registration allows the Checklist team to ensure the tool is being used by clinicians – who are directly caring for patients with epilepsy.
Registering for the Checklist means it will go directly to clinicians caring for patients with epilepsy.
This will give clinicians / professionals access to lots of free resources and quarterly news updates.
We will make sure you automatically get new Checklist versions as they’re released.
Please note registration is not automatic and the Checklist team (based at SUDEP Action) try to process these as often as possible.
If you have previously registered or think you may not be receiving updates about the Checklist, please contact info@sudep.org
Children’s SUDEP & Seizure Safety Checklist
Many wrongly assume that SUDEP is less common in children than in adults
However, every death is devastating and it is important this is recognised in the language used to discuss mortality risks with younger people with epilepsy and parents of children with the condition.
SUDEP is one of the highest causes of epilepsy-related death for both children and adults, though it is likely recognised figures are underestimated because not all SUDEP deaths are accurately recorded.
By having more discussions in a structured way – that is personal to each patient and based on the latest evidence into SUDEP and epilepsy mortality risks – understanding of risks can be better communicated to keep children and young people safer. Simple actions taken today can go a long way to saving lives.
Children’s SUDEP & Seizure Safety Checklist
Development Group Partners
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Dr Elaine Hughes – Consultant Paediatric Neurologist, Guy’s and St Thomas’ NHS Foundation Trust
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Prof Helen Cross – Prince of Wales’s Chair of Childhood Epilepsy, Great Ormond Street for Children NHS Trust, University College London, Young Epilepsy
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Dr Rohini Rattihalli – Consultant Paediatric Neurologist, Oxford University Hospitals NHS Foundation Trust
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Kirsten McHale – Epilepsy Specialist Nurse, Young Epilepsy
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Lisa O’Brien – Epilepsy specialist Nurse, The Meath
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Dr Colin Dunkley – Consultant Paediatrician and clinical lead for Epilepsy12, Sherwood Forest Hospitals NHS Foundation Trust
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Dr Suresh Pujar – Consultant Paediatric Neurologist, Chair of the British Paediatric Epilepsy Group (BPNA), Great Ormond Street for Children NHS Trust
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Dr Rohit Shankar Consultant in Adult Development Neuropsychiatry (Cornwall Partnership NHS Foundation Trust and Plymouth University Peninsula School of Medicine
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Sammy Ashby, Chief Executive (SUDEP Action)
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Ben Donovan, Special Projects Coordinator (SUDEP Action)
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Kezie Chukwudebelu, Digital Project Manager (SUDEP Action)
Also see
Support children, their families and their health professionals
Why use EpSMon? What users and experts say
SUDEP Awareness training can provide understanding
For one-to-one support after an epilepsy death contact our support team today
We provide the only support line for people bereaved by an epilepsy death and offer access to qualified counsellors who have a special interest and understanding in sudden and traumatic death.
