Our award-winning EpSMon app

“EpSMon is just what I need to monitor my risk in between visits to doctors. It helps me take action at all times as it measures my own particular risks of epilepsy. It can act as a safety net, being an excellent reminder of the importance of taking medication correctly and seeing my GP on a regular basis.”

“I think EpSMon is a brilliant, friendly and nicely designed app. It is a positive tool and I feel empowered in the way it encourages me to be active in self-monitoring. It asks direct questions which really help me consider how well I am looking after myself in order to avoid risks of seizures. It reminds you to do a three-monthly check-up and to make appointments with your doctor or neurologist when you don’t want to face up to how your epilepsy is affecting you.”

“EpSMon and the Checklist are easy to use and although it is difficult to make a definite link, we are not seeing the numbers of deaths that we would have expected in this local population, where the tools & risk communications have been used for some time.”

“When my son James was still with us we thought he was in the hands of experts. Although the doctors did their best I don’t think they or we were really aware of the patterns of seizures or the level of risk James was running until it was too late. The ability to keep a record like in EpSMon might not have changed the outcome for certain, but it would have given us all a lot more data to help structure our conversations and then plan James’s responses. This is one of those ideas that seems so obvious now it’s available, that we can’t understand why it hasn’t always been there.”

“The conversations about risk between doctor and people with epilepsy need to be accepted as routine, just as it is with other chronic conditions. I wish that EpSMon had been available to Katie; this would have allowed her to record important information on her mobile which could have been stored and then used to see if there were any triggers leading up to her seizures.”