I’m moving forward
I’m moving forward
You will always remember them
Moving forward after an epilepsy related death is not about forgetting. It’s about regaining some control and adapting to how life is now and the way things are. It’s about daring to step out from the darkness and look ahead to something that may bring hope. It’s understanding that grief – which might always be there – doesn’t have to rule the rest of your life.
It’s possible that for some time you’ve existed in a world that feels unfamiliar to you and are now ready to explore something different. You may feel motivated to do something that you have never previously done or wanted to do before.
Thoughts on grief: A personal perspective, from Sophie Pierce. Sophie’s son Felix died of SUDEP in 2017, aged 20.
I’m moving forward
To give their death meaning
Your motivation may be that you do not want anyone else to experience what you’ve gone through – and you want to create something positive out of something negative, so that the person you lost did not die in vain. To give their death meaning.
We are able to support you as you move forward, to provide information and guidance on what is available to you and to support you in the ups and downs of that journey.
Our support team is available to talk with you and help you explore your options.
Do not stand at my grave and weep
Do not stand at my grave and weep. I am not there. I do not sleep.
I am a thousand winds that blow. I am the diamond glints on snow.
I am the sunlight on ripened grain. I am the gentle autumn rain.
When you awaken in the morning’s hush.
I am the swift uplifting rush. Of quiet birds in circled flight.
I am the soft stars that shine at night.
Do not stand at my grave and cry; I am not there. I did not die.
Mary Elizabeth Frye
Also see
Every story matters, every voice has a right to be heard
The Epilepsy Deaths Register is shaping research priorities
Support is available, reach out today
For one-to-one support after an epilepsy death contact our support team today
We provide the only support line for people bereaved by an epilepsy death and offer access to qualified counsellors who have a special interest and understanding in sudden and traumatic death.
