“You don’t want to be alarmist when you’re delivering the news… so the Checklist is just a really useful way of introducing the conversation. It’s so nicely laid out that you can have the conversation and they can see what the consequences are so it helps your patients, empowering them to take control.”

“The Checklist is a good tool to assess risks of SUDEP in patients and provide guidance to patients and carers.”

“The SUDEP & Seizure Safety Checklist has helped have a conversation about SUDEP which can be a difficult one for patients to take on board. Once they know it is all about risks and safety, and which ones can be modified, it’s a lot easier. One patient said that he was not compliant at taking his medication. He had a referral to the local Medicine Support team and now has an electronic reminder which has lessened his risk substantially as he is now taking his medication on time.”

“I do talk more about SUDEP with patients and carers than I did before. The Checklist has made it easier to bring it up as part of the wider risk assessment.”

“This is a fantastic opportunity to bring potentially life-saving epilepsy risk information to the fingertips, or mouse clicks, of many primary care clinicians across England – some of whom may support people with epilepsy but be unaware of the significant risks the condition brings.”