FAQs
SUDEP and Seizure Safety Checklist
How do I get a copy of the Checklist?
Simply complete the form at the bottom of this page and we’ll send you a copy. It’s not available for automatic download.
SUDEP and Seizure Safety Checklist
I am not a UK clinician can I still use the Checklist?
Currently the Checklist is only available to Clinicians working within the NHS in the UK. However, we have plans to release the Checklist internationally soon; if you would be interested in this, please let us know.
SUDEP and Seizure Safety Checklist
I care for someone with epilepsy. Can I use the Checklist to assess their risk?
The Checklist is a tool for clinicians who care for people with epilepsy to support them in discussing epilepsy risks & wellbeing. If you are concerned about someone you know with epilepsy, consider using the EpSMon app instead.
SUDEP and Seizure Safety Checklist
I’m a paediatrician, can I use the Checklist with my patients?
The Checklist is not designed for children but we are currently working on a dedicated alternative Checklist to fit this need.
SUDEP and Seizure Safety Checklist
I work in a care setting, can I use the Checklist?
The Checklist is only for use by NHS qualified clinicians who manage the care of people with epilepsy. For non-NHS clinically qualified staff, working closely with patients to tackle epilepsy risks, we’d again recommend using our sister tool EpSMon instead.
SUDEP and Seizure Safety Checklist
Why do I have to give some of my personal information to receive the Checklist?
The Checklist has a clinical governance structure to ensure it is being used responsibly and appropriately in a clinical setting. Part of this requires collecting minimal personal information from the clinicians using the Checklist so we can contact you with new versions of the tool and important updates.
SUDEP and Seizure Safety Checklist
How often is the Checklist updated?
Every year the Checklist Development Team reviews the previous 12 months’ research into epilepsy, epilepsy risks and SUDEP to update the Checklist’s content and references as required.
Register to the SUDEP and Seizure Safety Checklist
Registration allows the Checklist team to ensure the tool is being used by clinicians directly caring for patients with epilepsy.
Please note registration is not automatic and the Checklist team (based at SUDEP Action) try to process these as often as possible. Registration allows the Checklist team to ensure the tool is being used by clinicians directly caring for patients with epilepsy.
If you have previously registered or think you may be missing emails about the Checklist please contact info@sudep.org. You will automatically receive updated versions of the Checklist once you have registered.
Also see
Why use the SUDEP and Seizure Safety Checklist?
Our research remains vital because of a culture that systematically downplays epilepsy risk
We want to create a paediatric version of the SUDEP and Seizure Safety Checklist.
For one-to-one support after an epilepsy death contact our support team today
We provide the only support line for people bereaved by an epilepsy death and offer access to qualified counsellors who have a special interest and understanding in sudden and traumatic death.
