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Family believe Charlie should still be alive today
The inquest into the death of Charlie Marriage will take place from June 24-28 at Inner London South Coroners Court, Southwark.
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GeneralPressure on party leaders to fix medicine shortages
SUDEP Action is continuing to work with Epilepsy Society, Epilepsy Action and Parkinson's UK to improve access to life-saving medicines.
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General‘Bella would be so proud’
SUDEP Action supporter Colin Eveleigh will have a work displayed at The Royal Academy's Summer Exhibition in July and August.
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GeneralNew study: More risk discussions needed with patients
Research compares views of epilepsy professionals in the UK and Norway: Despite international guidance, SUDEP-related discussions are still not consistently taking place.
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GeneralWe all need to ‘be more Hannah’
A family is urging each other to ‘be more Hannah’ in memory of Hannah Smith, who died last year from SUDEP.
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GeneralOur Help for Hope pledge – ask your MP!
If elected, I will meet with SUDEP Action to talk about rising preventable deaths and harms to people with epilepsy.
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GeneralPurple hearts for SMPs & Glasgow Uni to be lit purple!
Jessica Johnston died suddenly and unexpectedly from epilepsy in January 2022, just 20 years old.
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GeneralAnne’s Great South Run triumph
For six years, Anne O’Neill has completed the Great South Run in memory of her sister Brigid who sadly suffered a fatal epileptic seizure in November 2001.
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GeneralNew project to reduce epilepsy risk in Ireland
SUDEP Action has begun work with Epilepsy Ireland to introduce the SUDEP and Seizure Safety Checklist to Ireland.
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Sudden Child Deaths: The Search for Answers
SUDEP Action was disappointed with aspects of the BBC Panorama programme Sudden Child Deaths: The Search for Answers.
