General
We all need to ‘be more Hannah’
A family is urging each other to ‘be more Hannah’ in memory of Hannah Smith, who died last year from SUDEP.
Updates
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GeneralOur Help for Hope pledge – ask your MP!
If elected, I will meet with SUDEP Action to talk about rising preventable deaths and harms to people with epilepsy.
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GeneralPurple hearts for SMPs & Glasgow Uni to be lit purple!
Jessica Johnston died suddenly and unexpectedly from epilepsy in January 2022, just 20 years old.
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GeneralAnne’s Great South Run triumph
For six years, Anne O’Neill has completed the Great South Run in memory of her sister Brigid who sadly suffered a fatal epileptic seizure in November 2001.
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GeneralNew project to reduce epilepsy risk in Ireland
SUDEP Action has begun work with Epilepsy Ireland to introduce the SUDEP and Seizure Safety Checklist to Ireland.
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Sudden Child Deaths: The Search for Answers
SUDEP Action was disappointed with aspects of the BBC Panorama programme Sudden Child Deaths: The Search for Answers.
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People with epilepsy deserve better access to medicines
SUDEP Action is calling for more to be done to ensure people with epilepsy have better access to lifesaving medicines.
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GeneralNHS England-funded project is lasting legacy to Clive
Guidance designed to reduce the epilepsy risks faced by people with learning disabilities has been launched by NHS England and SUDEP Action.
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A mother’s perspective, by journalist Caroline Scott
My 21-year-old son Rupert had constant tonic clonic face-smashing seizures for over three years before a combination of drugs - different team at another hospital - helped get them under control last year.
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‘My Safety Matters’ is an important theme for now
My Safety Matters’ is central to SUDEP prevention. Safety matters because we care for life.
